jeanoappleseed

jeanoappleseed, wczoraj

@Pathfinder @TheAutisticTooter @actuallyautistic me three even though I’m gay

jeanoappleseed, wczoraj

@Pathfinder @devxvda @TheAutisticTooter @actuallyautistic I think my mask to myself is stronger than the mask i show others. That’s why I have such a hard time figuring out what I do to mask; i often am not sure or simply don’t know.

jeanoappleseed, 2 dni temu

@ArtBear @actuallyautistic @actuallyadhd @modgalfri Even though I haven't been roaming the #Fediverse very long, I agree that there are a lot of great people here and that it's a lovely place. I have only come across one "iffy" person and it was about them raising money for something suspicious and as soon as I reported them, they were blocked from my instance, so this is MUCH MUCH MUCH better than the 🐦

jeanoappleseed, 2 dni temu

@neuralex @cvwillegen @actuallyautistic For the longest time I did not find the pain scale illustration very helpful, but I then reevaluated my pain and how I discount pain (a lot from my upbringing perhaps, though it might be autism too.) I'm currently being treated for severe lower back pain which I had all my life, but endured as well as managed with NSAIDs until they told me they were bad for me & my heart. /1

jeanoappleseed, 2 dni temu

@neuralex @cvwillegen @actuallyautistic Now I tend to look at the faces in terms of how I feel as I work (in my garden, on my house, hard work, challenging for the body) and I find that the smiley or painful faces work better if I think of how my mood is from dealing with pain while working and then it makes more sense. BUT I had to adjust it and I agree with you that some people frown at a 2. /2

jeanoappleseed, 2 dni temu

@neuralex @cvwillegen @actuallyautistic I cannot say I've observed more or less pain tolerance with NTs, but I think that personally (and it seems for a lot of autists), pain is not looked at the same way. NDs seem to have a higher tolerance, but as you say I think that we mask. /3

jeanoappleseed, 2 dni temu

@neuralex @cvwillegen @actuallyautistic I also shame myself into not thinking I have pain. But pain I HAVE and it's something that I find very difficult to explain because it sorts of makes me sound crazy, ie how can you be in denial of pain. But it's definitely a problem for me./4✋

jeanoappleseed, 2 dni temu

@VoxofGod @neuralex @cvwillegen @actuallyautistic it’s being stuck between a rock and a hard place. I have similar issues, plus fatigue and the fatigue from putting up with the pain. There’s no easy fix though understanding yourself and your pain at least allows you to flag it to health pros when needed.

jeanoappleseed, 2 dni temu

@payaldhar @cvwillegen @neuralex @actuallyautistic add to that problems the health pros who might not take your pain seriously and I almost would never talk about pain and being so busy being in denial doesn’t help figuring things out for oneself. It can lead to worsening conditions or even more catastrophic

jeanoappleseed, 2 dni temu

@Hyperiontrails @payaldhar @cvwillegen @neuralex @actuallyautistic looks useful even though I do like the faces more I think. Trouble with the descriptions is that some people will push themselves through the same paint others wouldn’t.

jeanoappleseed, 3 dni temu

@ScottSoCal @actuallyautistic I totally get where he’s coming from. I’ve improved in my decision-making but still don’t like surprises or not being informed nor consulted. I get upset at receiving gifts from HB which are things I’ve always wanted or would if I knew they existed. My HB is great at guessing things I will love. But I still don’t like surprises or not being consulted. It’s complicated 😆

jeanoappleseed, 4 dni temu

@autism101 @actuallyautistic Anxiety is almost always with me. It's draining. Covid allowed me to experience solitude at a degree I'd never experienced. I love solitude. Covid gave me a socially-acceptable mean of not participating in social gatherings and events. For me it was extremely positive, though I realize the pandemic was just awful for most, not to mention the staggering number of deaths. /1

jeanoappleseed, 4 dni temu

@autism101 @actuallyautistic Having been forced-socialized in childhood, I repressed the anxiety, overlooked it, but it was stil a pit in my stomach. Every day. I could never escape it. I could only pretend to be calm. And that calmness is totally misleading. I'm calm until I cannot take any more and then I lose control. It's just awful. Although I know that forced-socialization helped me fit in better, it's inhumane & cruel to do that to a child with depression & anxiety. /2<end>

jeanoappleseed, 4 dni temu

@autism101 @actuallyautistic Yes, I definitely do this and no I don't know whether others are truly interested. Are they laughing because of my story or are they laughing because they find me funny, which I'm not trying to be. In the last 20 years, I have become increasingly silent. I silence myself. I love talking about my interests, but I also know I can monologue & it's embarrassing so better to be quiet.